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Patients Front and Center at the 2018 TMJ Patient-Led RoundTable

It is still all too fresh in the minds of many patients. Fifty years ago, between the 1970s and 1980s, some 10,000 TMJ patients received Vitek jaw implant devices.

Funding Opportunities now available for the NIH Common Fund’s Acute to Chronic Pain Signatures program

The NIH Common Fund's Acute to Chronic Pain Signatures program aims to understand the biological characteristics underlying the transition from acute to chronic pain and what makes some people susceptible and others resilient to the development of chronic pain.

Opportunity to Voice Your Opinion: U.S. Government Officials Want To Hear from Patients with Pain

FDA Public Meeting on Patient-Focused Drug Development for Chronic Pain On July 9, 2018, FDA hosted a public meeting on Patient-Focused Drug Development for Chronic Pain. https://www.federalregister.gov/documents/2018/05/15/2018-10284/patient-focused-

Consider Including the TMJA in Your Financial Planning

We were recently contacted by Tom P. who informed us that he was including The TMJ Association (TMJA), in his financial planning. Tom wrote the following for us to share with our readers:

The Scoop on TMD Pharmaceuticals

Let's say the National Institutes of Health just handed us a multi-million dollar grant to get to the bottom of TMD and find a cure once and for all. I mean, we could start handing out heating pads left and right, but that kind of relief can only get us so far. Whenever I try a different form of therapy or medication, I like to think about the biology, right down to the cellular and molecular level. Why are the cells that make up my jaw region being such jerks?

WHAT TMJ PATIENTS WANT

  • Jun 22, 2014

The TMJA conducted an online survey asking: "What do TMJ patients want?" The following is a summary of the top 20 responses we received.

  1. The medical community to understand the multi-components of TMJ
  2. To change the misconceptions of this disorder
  3. For people in the world to understand what a TMJ implant is and what handicaps it puts on your life
  4. A cure!
  5. Treatment to relieve the pain so I can open my mouth fully and enjoy all the food I used to like!
  6. For the condition to become a legitimate health issue to doctors
  7. Emotional support in a society where, not only medics and dentists, but one's own immediate relations seem deliberately blind and deaf to one's devastating physical problems
  8. Hope! Direction!
  9. Just to know others are out there that have the same problem; to hear other patients' stories and know they understand
  10. Help!
  11. Doctors who are sympathetic to the condition and offer compassionate care
  12. Research, clinical studies, standard treatments and practices dealing with TMJ and all of its causes
  13. PAIN RELIEF!
  14. Scientific and evidence based practice data
  15. To know if TMJ is the cause of other illnesses or are other illnesses the cause of TMJ
  16. Research dollars to be spent differently
  17. Medical progress
  18. To get the word out about TMJ disorders; too many doctors and dentists still have no idea that it even exists and can be a major problem
  19. To be recognized by the orthopedic community; after all the TMJ is a joint in the body
  20. The best damn science this country can give us and a lot of it!

For a more formal answer to the question of “What do TMJ patients want?” please read this informative and inspirational speech by co-founder and TMJA President, Terrie Cowley, presented to the International Consensus Workshop: Convergence on an Orofacial Pain Taxonomy in 2009. (Full Text PDF)