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TMJ Patient RoundTable Project: Status Update

The TMJ Association is acting as the catalyst to develop the TMJ Patient RoundTable, a broad initiative to advance the interests of patients with temporomandibular disorders (TMD). It encompasses collaborations with all stakeholders and

Educational Brochures on Chronic Overlapping Pain Conditions

This brochure addresses what are Chronic Overlapping Pain Conditions (COPCs), how COPCs are diagnosed, the complexity of the chronic pain experience, and how to work with your health care provider to develop a treatment plan. It is available by postal ma

Study Highlights TMD Evidence and Current Practice Gaps

The TMJ Association has long championed the need for strong evidence-based demonstrations of the safety and efficacy of TMD diagnostics and treatments. Sad to say, as the following journal article indicates, even among a network of research-oriented practices, dental providers are still resorting to such TMD treatments as occlusal adjustments in which teeth are irreversibly moved, ground down, or in other ways altered, a treatment for which there is no scientific evidence of efficacy.

Beware of Ticks and Lyme Disease

We are currently in the peak season for Lyme disease. Each year at this time we highlight this topic because we have heard from a number of patients over the years who were misdiagnosed and underwent unnecessary TMD treatments when they actually had Lyme

#*!"@!**! ... May Help Your Pain... and Improve Strength!

Our headline is adopting the comic strip convention of using symbols to denote swear words because we are intrigued by a report that swearing may have some health benefits.

WHAT TMJ PATIENTS WANT

  • Jun 22, 2014

The TMJA conducted an online survey asking: "What do TMJ patients want?" The following is a summary of the top 20 responses we received.

  1. The medical community to understand the multi-components of TMJ
  2. To change the misconceptions of this disorder
  3. For people in the world to understand what a TMJ implant is and what handicaps it puts on your life
  4. A cure!
  5. Treatment to relieve the pain so I can open my mouth fully and enjoy all the food I used to like!
  6. For the condition to become a legitimate health issue to doctors
  7. Emotional support in a society where, not only medics and dentists, but one's own immediate relations seem deliberately blind and deaf to one's devastating physical problems
  8. Hope! Direction!
  9. Just to know others are out there that have the same problem; to hear other patients' stories and know they understand
  10. Help!
  11. Doctors who are sympathetic to the condition and offer compassionate care
  12. Research, clinical studies, standard treatments and practices dealing with TMJ and all of its causes
  13. PAIN RELIEF!
  14. Scientific and evidence based practice data
  15. To know if TMJ is the cause of other illnesses or are other illnesses the cause of TMJ
  16. Research dollars to be spent differently
  17. Medical progress
  18. To get the word out about TMJ disorders; too many doctors and dentists still have no idea that it even exists and can be a major problem
  19. To be recognized by the orthopedic community; after all the TMJ is a joint in the body
  20. The best damn science this country can give us and a lot of it!

For a more formal answer to the question of “What do TMJ patients want?” please read this informative and inspirational speech by co-founder and TMJA President, Terrie Cowley, presented to the International Consensus Workshop: Convergence on an Orofacial Pain Taxonomy in 2009. (Full Text PDF)


In Treating TMJ

To view or order a free booklet about TMJ Disorders, visit the National Institutes of Health website.

U.S. DEPARTMENT OF HEALTH & HUMAN SERVICES
National Institutes of Health
National Institute of Dental and Craniofacial Research
Office of Research on Women's Health