Acting as the catalyst to advance the interests of TMJ patients, The TMJ Association developed the TMJ Patient-led RoundTable—a public-private collaboration among the federal government, scientists, clinicians, dentists, patients, advocates and manufacturers. Collectively, stakeholders possess broad expertise in numerous fields, including biomaterials and biomaterial sensitivity, infection, immunity, bioengineering, women's health issues, genetics, neuroscience, patient-centeredness, insurance practices, nutrition and bioethics.
The RoundTable is the first patient-led project conducted under the auspices of the Medical Device Epidemiology Network (MDEpiNet), a public-private partnership developed to bring real world data and patient experiences together with a broad array of experts to conduct studies aimed at improving outcomes for implant patients worldwide. A unique aspect of the RoundTable initiative is that it is patient-centered. The RoundTable was initiated by a need to find out why some TMJ patients improve with implant surgery, while others worsen. It has evolved into a comprehensive study of all aspects of TMD and how these aspects interact to affect patient outcomes. The goal is to establish a scientifically valid roadmap that can reliably predict treatment outcomes for individual patients.
The RoundTable Working Groups continue to meet on a regular basis.The following documents have resulted from these activities:
More information is also available at the MDEpiNet's website: http://mdepinet.org/tmj-patient-led-roundtable-crn/.