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National Academy of Medicine to Conduct a Study on Temporomandibular Disorders

We want you to be among the first to know that because of the advocacy efforts of The TMJ Association, the National Academy of Medicine (NAM) will conduct a first-ever study on Temporomandibular Disorders (TMD).

Dentists in Distress

Fear of the dentist is practically a rite of passage in youth. Growing up, I wasn't exactly afraid of the dentist; rather, any excuse to leave school early was a powerful incentive. These days, I have a more complicated relationship with dentistry: I go to get answers and try to feel better, but I always pop a prophylactic ibuprofen or two in case my jaw protests from the oral gymnastics.

Patients in Los Angeles or New York City Needed for Clinical Study - Comparative Study of Women Considering or Currently Receiving Botox© Injections for TMJ Pain

Are you a woman with "TMJ" pain in facial muscles, who has either: a. recently had Botox© injections for your pain or b. not had Botox© for your pain but has thought about such treatment? If either is true for you, you may qualify for an observational research study centrally administered by the NYU College of Dentistry. It is funded by the National Institutes of Health (NIH). The purpose of this study is to understand potential health risks that may be caused by treating "TMJ pain" with Botox© injections.

Patients Front and Center at the 2018 TMJ Patient-Led RoundTable

It is still all too fresh in the minds of many patients. Fifty years ago, between the 1970s and 1980s, some 10,000 TMJ patients received Vitek jaw implant devices.

Funding Opportunities now available for the NIH Common Fund’s Acute to Chronic Pain Signatures program

The NIH Common Fund's Acute to Chronic Pain Signatures program aims to understand the biological characteristics underlying the transition from acute to chronic pain and what makes some people susceptible and others resilient to the development of chronic pain.

Debbie's Story

  • May 13, 2015

I have been a diagnosed TMJ sufferer for more than 26 years. My story is a rather lengthy one.  But the short version is that I still have pain and now I have severe nerve damage.  I always tried to do the least invasive treatments and they seemed to work but only for a short while.  So, in the past 11 years I have had four surgeries to my jaw.

The first to just the left side in 2000 was to repair a dislocated and torn disc. I was pretty much pain free for five years when the “warranty” ran out. 

In 2005 I had the same surgery to the same side of my jaw by the same surgeon. This time I was never pain free and my surgeon refused to hear that I was in the same amount of pain after the surgery as before.  Due to the ailing health of my Mother and her death in 2006, I had to put my pain aside and take of her and my Dad and younger sister. 

In 2007 I had yet another surgery, this time a bilateral procedure that lasted five hours. Again, both discs were dislocated and both discs had significant holes in them. I was bone on bone and really had no choice but to have yet another arthroplasty.  This time my entire left side was completely swollen and I was transported by ambulance from the outpatient facility to the main hospital and had a three day stay courtesy of my jaw surgery.

Now the nightmare of numerous tests begins as everyone believes I’ve suffered a stroke because of the swelling and weakness on just my left side.  Turns out that’s not the problem at all; however, I wasn’t told that for many months to come namely about 18 months of trips to the emergency room and several days in the hospital under observation. 

I regularly saw a neurologist who never told me of my condition and repeatedly said I had Bells Palsy and that the nerves were regenerating and I was doing just fine.  Funny though, I never felt fine!  I complained always of the same thing; I have a burning pain in my left side of my face, my lower lip tingles and I still can’t raise my eyebrow on the left side so my smile is crooked.  But, I was doing just fine!  I regularly checked my symptoms on the internet and repeatedly came up with same diagnosis…what a wonderful invention the internet is…my internet diagnosis is Trigeminal Neuralgia! 

I’ve recently found a new neurologist and he’s now trying to get my nerve pain under control. Unfortunately for me I don’t respond well to medications and get the least known side effects that manifest quickly and to a great extent.  The new neurologist has said that not only do I have the 5th cranial nerve damaged which is for the Trigeminal Neuralgia I also have the 7th facial nerve damaged.  Lucky me, but my jaw is fixed and I can open and eat when I don’t have significant nerve pain. 

What a life we TMJ sufferers live. I’ll never eat a hamburger the way most people do (I cut mine up and rarely eat the bread) and I’ll never eat a slice of pizza by merely putting it my mouth and taking a bite and pulling it out of my mouth ( I cut mine up on a plate)…makes for a wonderful diet.  I’ve even been told I have such “dainty” eating habits little do people realize I would just like to eat like everyone else.

So, I just really wanted to share a small portion of my story and ask if anyone else has the same complications as I’ve had after repeated surgeries or has no one had as many arthroplasties as I’ve had? And, I’d like to know what treatments others are being prescribed for this same condition.  If there is no one, perhaps one of the many experts who are associated with the TMJ Association would be willing to discuss this with me.

My sincerest wishes for a Happy New Year to all TMJ sufferers and those who support this terrible disease.

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