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Patients Front and Center at the 2018 TMJ Patient-Led RoundTable

It is still all too fresh in the minds of many patients. Fifty years ago, between the 1970s and 1980s, some 10,000 TMJ patients received Vitek jaw implant devices.

Funding Opportunities now available for the NIH Common Fund’s Acute to Chronic Pain Signatures program

The NIH Common Fund's Acute to Chronic Pain Signatures program aims to understand the biological characteristics underlying the transition from acute to chronic pain and what makes some people susceptible and others resilient to the development of chronic pain.

Opportunity to Voice Your Opinion: U.S. Government Officials Want To Hear from Patients with Pain

FDA Public Meeting on Patient-Focused Drug Development for Chronic Pain On July 9, 2018, FDA hosted a public meeting on Patient-Focused Drug Development for Chronic Pain. https://www.federalregister.gov/documents/2018/05/15/2018-10284/patient-focused-

Consider Including the TMJA in Your Financial Planning

We were recently contacted by Tom P. who informed us that he was including The TMJ Association (TMJA), in his financial planning. Tom wrote the following for us to share with our readers:

The Scoop on TMD Pharmaceuticals

Let's say the National Institutes of Health just handed us a multi-million dollar grant to get to the bottom of TMD and find a cure once and for all. I mean, we could start handing out heating pads left and right, but that kind of relief can only get us so far. Whenever I try a different form of therapy or medication, I like to think about the biology, right down to the cellular and molecular level. Why are the cells that make up my jaw region being such jerks?

Courtney's Story

  • May 13, 2015

I'm a 21-year-old mom. I have been suffering from TMJ since I was 13 when I was fitted with braces. Suddenly, I had terrible facial pain which bothered me for years. It improved over time, until last week, when I needed to have some dental work done. Because I had not had severe pain for awhile, I neglected to tell my new dentist about my previous history with TMJ. That day, I had to sit with my mouth wide open for about 45 minutes as the dentist filled six teeth.

The next day I awoke to excruciating pain on the left side of my face. It became so bad that I couldn’t open my mouth at all, so that night I went to the ER at my local hospital. At the hospital, the doctor prescribed an antibiotic, assuming that I had an infection. He also prescribed Percocet for the pain. These medications made me nauseous and they only relieved the pain for about two hours, after a while it returned worse than before. I couldn't move my mouth and I couldn't talk. The only thing that gave me any relief was to put scalding hot wash cloths on my face. Not knowing what else to do, I returned to the ER. This time the doctor assumed that I was a drug seeker, so he gave me a shot of Toradol and told me to see my dentist.

Again, the treatment (the shot) helped me temporarily and I slept through the night, but the morning brought another day of unbearable pain. I tried taking high doses of Motrin and Tylenol even knowing that wasn’t a smart thing to do, but I needed to find some relief.

I did return to my dentist as fast as I could, but at the appointment, he said that he was sorry, he couldn’t help me anymore. He referred me to an oral maxillofacial surgeon. This time I was given a prescription for Valium and even that is not helping – the pain is intense and my ear hurts so much.

One of the worst parts of my story is that I was feeling that nobody I went to believed me when I described my pain and how terrible it was – and it is! Then I found this website [www.tmj.org] and learned that I am not alone. It was such a relief to know that there are many others who understand what I’m going through, because they are experiencing it, too. The website has taught me so much about TMD. I am so glad I found it and I wish good luck to everyone suffering from this horrible disease.

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