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TMJ Patient RoundTable Project: Status Update

The TMJ Association is acting as the catalyst to develop the TMJ Patient RoundTable, a broad initiative to advance the interests of patients with temporomandibular disorders (TMD). It encompasses collaborations with all stakeholders and

Educational Brochures on Chronic Overlapping Pain Conditions

This brochure addresses what are Chronic Overlapping Pain Conditions (COPCs), how COPCs are diagnosed, the complexity of the chronic pain experience, and how to work with your health care provider to develop a treatment plan. It is available by postal ma

Study Highlights TMD Evidence and Current Practice Gaps

The TMJ Association has long championed the need for strong evidence-based demonstrations of the safety and efficacy of TMD diagnostics and treatments. Sad to say, as the following journal article indicates, even among a network of research-oriented practices, dental providers are still resorting to such TMD treatments as occlusal adjustments in which teeth are irreversibly moved, ground down, or in other ways altered, a treatment for which there is no scientific evidence of efficacy.

Beware of Ticks and Lyme Disease

We are currently in the peak season for Lyme disease. Each year at this time we highlight this topic because we have heard from a number of patients over the years who were misdiagnosed and underwent unnecessary TMD treatments when they actually had Lyme

#*!"@!**! ... May Help Your Pain... and Improve Strength!

Our headline is adopting the comic strip convention of using symbols to denote swear words because we are intrigued by a report that swearing may have some health benefits.

Brittani's Story

  • May 13, 2015

My TMJ problems started when I was 13 years old. We're not 100% sure what started it, but my doctors think it was a combination of me already having Juvenile rheumatoid arthritis and the fact I had my fourth open heart surgery and I was intubated for a long amount of time.
 
After the surgery my jaw started clicking and it started to hurt a lot. About three months later, I was back to school, eating lunch with my friends and my jaw locked open. I started freaking out, my friends rushed me to the school nurse and she drove me to the ER. This would soon become my life.
 
From the ages of 13 to 17 my jaw locked open about 300 times. A part of my jaw bone formed a chip and when it would lock, it would lock right into the chip. I would have to be sedated at the ER each time it would lock. My head was wrapped with Co-flex [flexible bandages] days after, just to keep it in place. Off and on it would get so bad I had to be home-bound, because I was going to the ER so often and the pain was so bad. I was on Vicodin and a muscle relaxer.
 
I've had my mouth wired shut two times. I've had both sides shaved down twice and then my most recent surgery was three years ago when implants were put into each side. They worked well for three years; but as of the past six weeks, my implant on the right side is now moving.
 
I live in Illinois and, as of July 1st, dental isn't covered either by Medicare or Medicaid. Everything I ever had with my TMD was always covered, which I'm thankful for, but now I'm worried what’s going to happen. I don't want to know what the pain is like when my jaw locks with the implant still in, and I don't agree that TMD is dental. I have a heart and lung illness− one lung and a long list of issues with that. Even with all of this, TMD is the most annoying.
 
I didn't do a lot from the ages of 13 to17, because I was afraid of having fun. I'd laugh and it would lock. Now it is starting again and my doctor won't give me any good pain meds, other than Advil. I guess she doesn't get that a titanium implant moving inside my jaw is quite painful. Eating anything other than soft foods and soup is out of the question. I'm hoping so much I can get this fixed ASAP!

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